Resources

 

It is important to educate yourself as much as possible about clinical trials.  In an effort to assist you in finding helpful information, we have provided the following links:

Center for Information and Study on Clinical Research Participation (CISCRP)
A resource to educate and inform the public and patients about clinical trials.
www.CISCRP.org

Cerebral Palsy Group (CP Group) 
Cerebral Palsy Group (CP Group) is an online resource for anyone who has been affected by cerebral palsy, brain injuries, or birth injuries. CP Group is dedicated to providing information, material, and resources that are available to both families as well as those who have been diagnosed with cerebral palsy.
cerebralpalsygroup.com

ConsumerDangers.com
ConsumerDangers.com is dedicated to keeping the public informed about consumer dangers and safety issues associated with numerous products that can cause the public harm.   The website is continually updated with breaking news from Government agencies, Watchdog Groups, and concerned citizens about Recalls & Safety affecting consumers.
www.consumerdangers.com/products

The Cord Blood Center
The Cord Blood Center is a valuable resource dedicated to promoting the benefits of public cord blood banking. Umbilical cord blood has helped children survive over 80 diseases including leukemia, lymphoma, and anemia and is now being used in older patients. The Cord Blood Center’s mission is to help others understand how they can benefit and help save the lives of sick children in need.
www.cordbloodbanking.com

Additionally, The Cord Blood Center has developed a sister site that offers a free downloadable guide as well as user friendly content relating to cord blood and how cord blood banking works.    To view Your Guide to Cord Blood Banking, visit www.cordbloodguide.com.

Department of Health and Human Services (DHHS)
DHHS is the government’s principal agency for protecting the health and well-being of all Americans.
www.DHHS.gov

US Food & Drug Administration (FDA)
An agency within the Department of Health and Human Services (DHHS) that protects and promotes health.
www.FDA.gov

Mesothelioma Group
Mesothelioma Group is a small team of healthcare professionals, patient advocates, and communication specialists who have one goal: to lead the way in supporting and encouraging mesothelioma patients and their families by offering free information, education, and financial support and resources directly on our site for patients and their families.
http://www.mesotheliomagroup.com/treatment/

Mesothelioma Guide
Mesothelioma Guide is focused on helping to guide patients suffering from mesothelioma to the best healthcare options for them.
www.mesotheliomaguide.com

Mesothelioma Prognosis Network
An advocacy group dedicated to providing free information and resources to the public, patients and families affected by asbestos-related cancers, such as mesothelioma.
www.mesotheliomaprognosis.com/doctors/clinical-trial/

National Cancer Institute (NCI)
The National Cancer Institute (NCI) is part of the National Institutes of Health (NIH), which is one of 11 agencies that compose the Department of Health and Human Services (HHS).  The National Cancer Institute coordinates the National Cancer Program, which conducts and supports research, training, health information dissemination, and other programs with respect to the cause, diagnosis, prevention, and treatment of cancer, rehabilitation from cancer, and the continuing care of cancer patients and the families of cancer patients.
http://www.cancer.gov/
NCI Fact Sheet and Questions and Clinical Trials

Trialogics
Interactive Response Technology (IRT) – also known as IWR (Interactive Web Response) is a critical system within the eClinical software segment for clinical trials. IRT automates functions to ensure proper management of patients, sites and clinical supplies. Throughout the trial, IRT is used to enroll and monitor subjects as well as serving as the system of record if, during the course of a blinded study, a need arises to expose the treatment of a patient. All site clinical supply levels are monitored and resupplied throughout the trial via the IRT system.

Electronic Patient Reported Outcome (ePRO) – Once a Patient/Subject is enrolled in a study, an ePRO (smartphone) device is provided to the patient in order to collect information per the protocol. Typically this information is in the form of a questionnaire. Trialogics will provide this standard service as well as the ability to collect data from wearables and other medical devices when introduced.

To learn more, please go to:  https://trialogics.com/

To schedule a demo, please go to:  http://trialogics.hs-sites.com/trialogics-irt-epro-demo?__hstc=127260050.63cc2e382ba89379508c6b1967a5f37e.1455207191495.1469212084378.1469483807953.16&__hssc=127260050.4.1469483807953&__hsfp=1885560172